Peer Support Groups

Some people living with HE recurrences find it helpful to talk with others who are also living with HE. By participating in a support group you can speak with other people who are experiencing similar issues.

Group members can provide information and support in ways that your family and friends may not be able to. People share their feelings, discuss how they handle medications and procedures, and provide tips on living with HE. Keep in mind that these groups are made up of peers – or other people living with HE – who are sharing their personal experience and any advice you receive should be checked out with your doctor to make sure it’s appropriate for your particular medical situation.

Below is a listing for an online support community. People can connect with those living with HE, but their family members and friends as well.